The Best Deathcare Sites Online

If you’re interested in hospice care for yourself or a loved one, where do you seek advice? Hospice or palliative care, has been around for just over a quarter century, so you might not know where to seek information or which questions to ask about death care for yourself or a family member or friend. To that end, we’ve compiled a list of sites that belong to well-organized nonprofit groups or professional organizations or that have been built by professionals in the death care field.

The following list is filled with sites for patients, but a few are geared toward professional caretakers. We included those sites, as they are filled with information that patients and caregivers might want to know. Additionally, the list below is in no particular order. We don’t advocated one site and its information over another.

  1. Hospice is a comprehensive site geared toward educating viewers on death care and hospice and palliative care programs. They focus on the explanation and education of hospice services, help for patients, children and caregivers through articles and links to valuable online information.
  2. Hospice Foundation of America exists to help those who cope personally or professionally with terminal illness, death and with the grief process. Hospice Foundation of America meets its mission by conducting programs of professional development, public education and information, research, publications and health policy issues. Their programs for the public assist individual consumers of health care who are coping with issues of caregiving, terminal illness, and grief.
  3. The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. NHPCO advocates for the terminally ill and their families, develops public and professional educational programs and materials, conducts research and works closely with other organizations that share an interest in death care.
  4. The American Hospice Foundation outperforms most charities in America in its efforts to operate in the most fiscally responsible way possible, according to Charity Navigator. Their mission is to improve access to quality hospice care through public education, professional training, and advocacy on behalf of consumers. They also support programs that serve the needs of terminally ill and grieving individuals of all ages.
  5. International Association for Hospice & Palliative Care (IAHPC) operates to help increase and optimize the availability of access to hospice and palliative care for patients and families throughout the world. IAHPC focuses on program development, education, information dissemination and policy changes to improve availability of good and adequate care of patients with advanced diseases. They support programs, projects and individuals around the world, especially in developing areas in Africa, Eastern Europe, Asia and Latin America.
  6. The Hospice Patients Alliance (HPA) was formed in August of 1998 as a nonprofit charitable organization to serve the general public throughout the United States. It was formed by experienced hospice staff and other health care professionals who saw that hospices were not always complying with the standards of care, and in fact, were in some cases, violating the rights of patients and families and exploiting them for financial gain, or not providing adequate care to control pain or other distressing symptoms during the end of life period. HPA promotes quality hospice services whether a patient is enrolled in a licensed hospice or not, whether residing at home or in a facility. HPA protects the rights of patients, their families and caregivers, the bereaved and staff by providing information about the standards of care governing the health care provided, the services required to be provided by law, standard industry practices and how to obtain the very best hospice care available.
  7. Hospice Directory is more than a directory. This site provides information on how to choose a hospice to hospice stories and a caregiver’s corner. They break hospice care centers down into state hospice organizations and Canadian/Provincial hospice organizations to make it easy to find one near you. HospiceDirectory.org is a subsidiary of its founding sponsor, the Hospice Foundation of America (HFA), and it is the most comprehensive and user-friendly hospice directory around.
  8. Children’s Hospice International‘s ultimate goal is to so ingrain the hospice concept into pediatrics that it isn’t considered a separate specialty, rather, an integral part of health care for children and adolescents. CHI works closely with health care professionals¬† providing technical assistance, educational materials, and other resources. They also help the families and friends of a child with a life-threatening condition by providing literature specific to families, connecting them to local resources, and offering support.
  9. The American Academy of Hospice and Palliative Medicine (AAHPM) is dedicated to expanding access of patients and families to high quality palliative care, and advancing the discipline of Hospice and Palliative Medicine through professional education and training, development of a specialist workforce, support for clinical practice standards, research and public policy. Their core purpose is to improve the care of patients with life- threatening or serious conditions through advancement of hospice and palliative medicine. The Academy is the professional organization for physicians specializing in hospice and palliative medicine. Membership is also open to nurses and other healthcare providers who are committed to improving the quality of life of patients and families facing life-threatening or serious conditions.
  10. Help the Hospices is a UK site that supports hospice and palliative care throughout the UK. The site is geared toward all involved in the death care process, including professionals, patients and families. They also support a directory of hospice services available throughout the UK and Ireland and an international directory for palliative care services outside the UK.
  11. National Association for Home Care & Hospice is the nation’s largest trade association that represents the interests and concerns fo home care agencies, hospices and home care aide organizations. From professional development to fighting for better regulation, from knowing all angles of federal and state regulations to providing the latest information affecting home care and hospice, NAHC stands ready to serve your needs, enabling you to better serve your patients.

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