Posts Tagged ‘cancer’

New Reports: Caregivers, Doctors and Patients on Dying

Thursday, June 18th, 2009

Nearly two-thirds of Americans [PDF] believe the law should empower terminally-ill, competent patients to choose how they will end their lives. Yet, the AMA’s (American Medical Association) outspoken opposition to aid in dying has been cited by the Supreme Court and influences lower courts, state medical societies, and most important, legislatures.

The AMA claims to speak for doctors, and the media often echo that assertion, yet barely a quarter of the nation’s physicians are AMA members. Many medical and public health organizations have policies that support aid in dying, including the American Medical Women’s Association, the American Medical Student Association, the American College of Legal Medicine and the American Public Health Association. Still, according to a study recently conducted by Georgetown University Hospital, nurses, doctors and patients all feel some frustration, fear and abandonment during the end-of-life cycle for a patient in a hospital setting.

Nurses, in particular, who completed an End-of-Life Nurse Consortium Course, were asked about their training. Surprisingly, about 52 percent of nurses in the study said they never received this training, yet 43 percent reported they had been involved in one to three end-of-life situations within the previous six months.

Over 100 nurses attended the course, and while survey results are still pending, there have been some changes. All newly-hired nurses at the hospital now receive the training, and all of inpatient oncology and hematology nurses are required to take the end-of-life training course. The study found nurses that receive end-of-life education and training can positively impact the lives of patients and families facing difficult times, according to the report at WFTV. According to the news story:

Another study shows patients who are dying and their families report that feelings of abandonment by their physicians at the end-of-life have two components: a loss of continuity of care before death and a lack of closure near death or afterward. “Early on, patients and family caregivers fear that their physician, whose expertise and caring they have come to depend on, will become unavailable,” the authors write. Most physicians are not consciously aware of having abandoned their patients. Instead, they report lack of closure or a feeling of unfinished business. The report could help physicians structure care to maintain the professional value of non-abandonment, including use of non-hospice palliative care or closure-promoting communication strategies involving nurses and other members of the health care team. As end-of-life approaches, physicians should offer assurances that they’ll still be available and should maintain contact with the patient and caregiver, according to Anthony Back, M.D., of the Seattle Cancer Care Alliance, and colleagues.

Interestingly, patients with advanced cancer who discuss end-of-life care with their physicians appear to have lower health care costs in the final week of life than those who do not, according to a report in the Archives of Internal Medicine. Formal and informal caregivers who were interviewed after the patients’ deaths reported that those with higher costs also had a worse quality of death in their final week.

Three Killer Diseases Designed for Palliative Care

Thursday, March 19th, 2009

Today’s top killer diseases in the United States include heart disease, cancer and stroke. Men and women both are susceptible to these diseases, which cover such ailments as coronary artery disease, heart failure, heart rhythm disorders, all types of cancer and ischemic and hemorrhagic strokes. These diseases, once developed, often are fatal.

But, not everyone who develops heart disease or cancer or who suffers a stroke die immediately. Often, these victims need help, and palliative care, or hospice care, is one route to take for this help. Here are a few reasons for heart disease, cancer and stroke patients to choose hospice services:

Heart Disease: Patients who suffer heart disease often suffer through cycles of treatment. They experience extreme pain, get treated, go home and then experience extreme pain again. Sometimes, a little help on the home front can increase the time between extreme episodes. However, patients would need to meet certain criteria for hospice care, including the prognosis of six months or less left to live.

Cancer: When cancer treatment no longer is viable or a cancer patient cannot tolerate treatment, then hospice care becomes appropriate. Opting for palliative care does not mean that the cancer patient is giving up. Instead, the patient is opting for an alternative to learning how manage symptoms and to improve quality of life while living with this disease.

Stroke: The severity of the effects of a stroke will help determine if a patient needs hospice care. The criteria for hospice care includes a coma, persistent vegetative state, and/or severely reduced level of consciousness and abnormal muscle contractions. Usually, the patient’s prognosis after the first three days following a stroke will determine the need for palliative care.

Remember that Medicare and many private insurance plans won’t cover hospice care and hospital admissions for the same diagnosis at the same time in any disease. With that said, when a patient has exhausted all resources and the end of life seems imminent, hospice services can make the end-of-life transition more comfortable for patients and their loved ones.

Hospice care workers who visit the home to care for heart disease, cancer and stroke victims patients can:

  • Help with pain and symptom management.
  • Help to avoid hospital admissions.
  • Help to gain access to community resources and assist with emotional and spiritual needs.
  • Can help with death care management.

These services can help family members spend more time with the patient as the hospice worker takes on the responsibilities of keeping the patient comfortable and at ease. If you’re interested in using hospice care, you can find many resources here .